Author(s): Ann Andrews & Jennifer Dann
This book is for people with Parkinson’s and the people who care for them. It draws on the personal experiences of over forty people living with Parkinson’s in the hope that sharing their journeys may help readers navigate theirs. Living and Caring is designed to be read once Parkinson’s has progressed to a point where the concept of ‘care’ needs to be considered in all its complexity and offers readers the opportunity to share the experiences of both people with Parkinson's and caregivers and their reactions to a wide range of challenges.
By covering the care partnership from both sides of the caring coin, readers can understand things from each other’s perspectives and hopefully work together on solutions that work for each unique relationship and situation. People with Parkinson’s and carers were interviewed separately and their quotes are anonymous so that both could be totally frank about their feelings, struggles and insights.
It is organised by subject so readers can dip into topics as they become relevant, as the progression of Parkinson’s varies so widely from person to person.
"This book is a valuable resource for those that care. It shows that we are 'in this together' and demonstrates the vital role that carers play in the lives of people living with Parkinson's" - Steve Sant, CEO Parkinson's Australia
"This is a marvellous book, and there is much in it for people with Parkinson’s and their families." - Barry Snow, Neurologist and Chair of the Neurological Foundation of NZ
"…This is a book that will certainly connect with and help many people in Parkinson’s communities around the world." - Deirdre O’Sullivan, Chief Executive Parkinson’s New Zealand